thérapie génique
-
Cancel My Ticket to Heaven
Ever since Rett syndrome entered our lives, I have noticed something that I never saw before. I see disability everywhere now – in stories online, in support groups, in comments from strangers who think they are offering comfort. And one… Continue reading
-
Chapter 6: The Clinical Trial Journey Begins
The crisp Canadian air filled Andree’s lungs as she stepped off the plane in Toronto. Beside her, Adeline squirmed in her adapted stroller, her wide eyes taking in the unfamiliar surroundings. The whole preparation for the trip had been exhausting,… Continue reading
-
Chapter 5: The Long Road to Clinical Trials
The path to enrolling their daughters in the gene therapy clinical trials was fraught with obstacles. Andree, Rana, and Maria faced a daunting array of paperwork, medical evaluations, and logistical challenges. Each step forward seemed to be met with a… Continue reading
-
Chapter 4: Seeking New Horizons
The quest for better treatments and a potential cure for Rett syndrome became a consuming focus for all three mothers. They attended conferences, spoke with leading researchers, and kept abreast of the latest scientific developments. It was during one such… Continue reading
Cure Rett Canada 