advocacy
-
Cancel My Ticket to Heaven
Ever since Rett syndrome entered our lives, I have noticed something that I never saw before. I see disability everywhere now – in stories online, in support groups, in comments from strangers who think they are offering comfort. And one… Continue reading
-
Chapter 4: Seeking New Horizons
The quest for better treatments and a potential cure for Rett syndrome became a consuming focus for all three mothers. They attended conferences, spoke with leading researchers, and kept abreast of the latest scientific developments. It was during one such… Continue reading

