advocacy

  • Cancel My Ticket to Heaven

    Ever since Rett syndrome entered our lives, I have noticed something that I never saw before. I see disability everywhere now – in stories online, in support groups, in comments from strangers who think they are offering comfort. And one… Continue reading

    Cancel My Ticket to Heaven
  • Chapter 4: Seeking New Horizons

    The quest for better treatments and a potential cure for Rett syndrome became a consuming focus for all three mothers. They attended conferences, spoke with leading researchers, and kept abreast of the latest scientific developments. It was during one such… Continue reading

    Chapter 4: Seeking New Horizons