English Articles
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Seeking Relief: The Complexities of Hiring Carers and the Need for Respite in Rett Syndrome
Caring for a child with Rett syndrome is an incredibly demanding and challenging task. The complexities of the condition, which include severe cognitive, physical, and communicative impairments, require carers to possess specialized skills and profound patience. Unfortunately, hiring qualified carers… Continue reading
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Facing Reality: Understanding Denial Among Rett Syndrome Families
Denial is a psychological defense mechanism where a person refuses to accept reality or facts, often because they are too painful or difficult to handle. This mechanism can protect the individual from anxiety or stress temporarily, but it can also… Continue reading
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Intellectual Abilities and AAC Devices in Rett Syndrome
For decades, it was believed that individuals who suffer from Rett Syndrome have severe intellectual disability. As a matter of fact, most scientific literature to this day defines Rett Syndrome as one of the leading causes of “mental retardation” in… Continue reading
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Life Expectancy: One Google Search
The phone rings and the geneticist give you the most heart-breaking news a parent should ever hear. “The genetic test confirmed the presence of a mutation on the MECP2 gene; I am sorry to say, your daughter has Rett Syndrome”.… Continue reading
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